Q1: Are your out-of-pocket medical costs* unreasonable?
*
*Out-of-pocket costs include deductibles, coinsurance, co-pays for covered service, as well as cash pay healthcare costs for services that aren't covered by insurance.
Yes
No
For what specific treatments or medications have you encountered unreasonably high out-of-pocket costs? What condition were they prescribed to treat?
Please describe the impact that high copays and other out-of-pocket costs have had on your financial situation, as well as the mental or emotional strain they may have caused. Have these costs led to financial hardship, affected your well-being or that of your loved ones, or forced you to make difficult decisions, such as forgoing necessary medical care?
Q2: Have you or a family member/loved one ever benefited from a new medicine or treatment like an immunotherapy or targeted gene and cell therapies?
*
Yes
No
I don't know
What condition was this medical treatment or medication(s) prescribed for?
Please describe how this innovative treatment impacted your quality of life or the life of a loved one/patient (e.g. allowed me or my caregiver to go back to work, avoided hospital visits or long, expensive hospital stays, extended lifespan, etc.).
Why do you believe access to new treatments is important? How would limiting access to new treatments affect health outcomes for you?
Q3: Have you or a family member/loved one ever faced challenges with insurance coverage for new or innovative treatments?
*
Yes
No
How did these barriers impact your health/the health of your loved one?
Has your insurer ever denied or delayed coverage because of prior authorization? If so, what specific treatments or medications did they deny or delay? Please share your experience.
Were you eventually successful in securing coverage?
Yes
No
How much time did you spend attempting to resolve/appeal the issue with your insurance before abandoning your efforts?
Days
Weeks
Months
Years
Why do you think it’s important for patient perspectives to be considered in value assessments and healthcare policy decisions?
Q4: Please describe what improvements or reforms to health insurance you wish to see.
*
Q5: Are you willing to share your story publicly to advocate for policy changes?
*
Yes
No, I wish to remain anonymous
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